Hello! We are officially moved in and I have internet at home again. The move went so smoothly, thanks to SO many people - my parents, my uncle Pat and aunt Mary Jo, my cousin Kevin, my friends Joni, John and Brooke. I seriously don't know what I would have done without their help. The move out of my apartment took a little less than 2 hours and the move into the townhome took less than 30 minutes! It was so slick! We aren't fully settled in yet. There are still plenty of boxes to unpack! It just feels so good to be in a bigger place! It is very weird sleeping in a different room than Ruby. I haven't slept 100% the past couple of nights because I worry that I might not hear her cry (even though I do) and it is also very weird not to hear her breathe or move, so I have gotten up a few times in the middle of the night very disoriented wondering where she is and if she's okay. Her door is only a few feet from mine, but it's going to take some getting used to. She seems to be sleeping a little longer and has only been crying once around 3 or so, falling back to sleep and then getting up at 5 to eat some breakfast!

Today Ruby had an appointment with her cornea specialist. He has been seeing her since she was in the NICU and has been evaluating her to see if she's a candidate for a cornea transplant. In the past he hasn't felt that it would be a worthwhile procedure and the bad things far outweigh any good that could come of it. At this point, he doesn't feel that doing  a corneal transplant would help her to see better. Her right eye (which was supposedly her better eye) has started to turn in, almost like she's going cross-eyed in that eye. That means that it is getting limited visual stimulation and could be getting worse. Her left eye is better than the right, but still not very good. He can tell that she can see light in both eyes, but he just can't say how much. I am quite sure that Ruby can see more than we think and we really won't know until she can tell us!

Ruby was, as always, the hit of the waiting room at the doctor this morning. That girl attracts so many admirers! People just come up and talk to me like we are long-lost friends. I was talking to a woman in the waiting room today whose son was born with Cerebral palsy and is in a wheelchair. We were talking about how people ask the oddest (and sometimes very rude) questions about our children with special needs. Her son is now 16, so she's had many years of experience with this. She said that when he was a baby, it was really hard and the rude and probing questions and comments hurt her. I completely relate to that. I think it takes a long time to build up a tough skin and to not be affected by the questions people ask about your beloved and beautiful child.

Tomorrow Ruby has a meeting to check on the progress of OT, PT, and vision therapy. All of her therapists are coming over in the morning to chat and discuss Ruby's strenghts and weaknesses. It should be interesting. Then, we are heading up to the NICU to visit Ruby's good old friends there, namely her primary nurse who took care of her much of the time she was in the hospital. I'm really excited to see some of those friendly faces again who were so wonderful to Ruby while she was living there! On Friday, Ruby has a NICU follow-up appointment. She will be seen by the neonatologist who has been monitoring her progress since she was discharged. Those appointments are really fun too, because her doctors at Fairview were amazing and they always provide me with great insight and encouragement. They really enjoy seeing Ruby, too. I'll let you know how it goes and what I find out!

Hope everyone is doing well and thanks for checking up on miss Ruby!